Hailey is an amazing 2 year old girl who has Sturge-Weber Syndrome (SWS). SWS is a progressive neurological disorder that is very rare. The most visible part of the disease is a Port Wine Birthmark. It is created by enlarged blood vessels that can cover part of the brain. Of those born with a Port Wine Birthmark, 3% will develop SWS. 1 in 50,000 babies are born with this disorder. Hailey is one of a small percentage who has both! This disease can cause seizures, developmental delays, glaucoma and many more health concerns.
to The Sturge-Weber Foundation
Hailey's Hope for Sturge-Weber Awareness was created to raise awareness about Sturge-Weber Syndrome and disability inclusion. Our hope is to raise money through the Fun Run to help The Sturge-Weber Foundation. This organization was created to support those who live with Sturge-Weber Syndrome and their families. If you would like to donate to the foundation in honor of Hailey, you can do so by clicking the link below. All donations are so appreciated.